SURVIVAL TIPS FOR ME/CFS

Welcome to my blog of survival tips for people with ME/CFS.

I wish I could wave a magic wand and make us all healthy right now. I see so much horrible suffering because of this devastating illness.

Today, sadly, there is no medication or cure for chronic conditions such as ME/CFS. This blog is part of my effort to fight for public acceptance and increased funding for research that could lead to a treatment – or even a cure.

I’ve had severe ME/CFS symptoms on and off since 1974. I am currently homebound and in my fourth episode. My overwhelming symptoms forced me to retire from a job that I loved and a happy life of quilting, traveling the world, and walking on the beach near my home.

After 20 years of successfully managing computer systems for a County government department, I was suddenly alone, sleeping constantly, in pain, and struggling with brain fog. I was frustrated and angry that ME/CFS had torn apart my wonderful life again.

What I know is that everyone’s symptoms are different, so I can only suggest issues for you to think about. My goal is to share tips I’ve learned so that you can find personalized strategies to ease your journey.

Do not expect my ideas to heal you. What I’m hoping is that by looking at one issue at a time, you can take slow baby steps to develop coping skills to make your daily life easier.

I’m not a doctor, so I can’t prescribe anything. I have no magic pills to sell.

Always check with your medical team before making any changes.

Let’s begin!